I'm new to the forum, I have ended up here multiple times during my long journey trying to figure out what is wrong with me so I figure I should maybe post in here and see if I get a good opinion...
It has been over a year that I have been dealing with strange sensations down my legs ( mainly at night at the beginning). Felt a lot like Peripheral Neuropathy at the beginning. At the time I went ahead and got an MRI to find out I didn't really have anything in my spine, got checked for diabetes also nothing (did a 2hr glucose test). Most of the time these sensations down my legs would get worse when I would eat dairy, gluten, sugar in general, certain nuts and sometimes even chicken. It was almost impossible to predict what would give me these things. I also always felt very angry, a lot of mood swings, depression, anxiety, the list keeps going...
I went to an Endocrinologist and got my thyroid and other hormones checked:
LH 15.4 mIU/mL / FSH 6.4 mIU/mL
Calcium 5.6 mg/dL / DHEA-Sulfate 206.2 ug/dL
TSH 2.080 uIU/ml / Prolactin 24.8 ng/ml (came out high)
Estradiol 34 pg/ml / 17-OH-Progesterone LCMS 91 ng/dL
Vitamin D 25-Hydroxy 37 ng/mL / Total T4 7.2 ug/dL
Free T3 2.2 pg/mL / PTH 28 pg/mL / Cortisol-AM 28.8 ug/dL (high)
Thyroid Peroxidase (TPO)Ab 23 IU/mL
( I have many more labs that I have done but thought these would be the most important)
While my Endocrinologist said "Everything looks fine" my primary care physician really didn't think so... she put me on a low dose Nature-Throid because she thinks my t3 was too low. At the beginning I got some relief ( but it literally lasted only 3 days..) She also told me to go back to my vitamin d3, something my endo had told me to stop because my d3 was "fine". I always feel a little bit of relief when I take it but doesn't last very long during the day.
I also haven't had my period in over 3 years naturally... since I was a kid I was always given birth control pills but no one really told me why, I'm from brazil and there I was given one called " Ciclo Elani" which is drospirenona 3mg and etinilestradiol 0.03mg. 4 years ago I decided to stop because I was tired of the bad rep birth control pills had and it also always messed up my stomach.
My primary care has different opinion as far as what is going on with me, she is positive I have leaky gut, which with the fact that I respond terribly to multiple foods makes me agree with it. I suspect candida but the symptoms of it match a lot estrogen dominance as well, which I'm not 100% sure if I do have, I read online about the progesterone/Estradiol ratio and when I calculated it, it seemed like I was really estrogen dominant.
Dr Jack Kruse a Neurosurgeon has a website online that talks about neuropathy and the effect estrogen, and multiple other factors that a lot of neurologist wouldn't think about, have on the nerves. He also talks about how any cause of leaky gut can also be an etiology for neuropathy even in a non diabetics.
I'm so lost at this point, I went to a gastro and he didn't want to test me, he put me right away on Xifaxan (antibiotics) and gave me VSL#3 (powerful probiotic) to do right after the treatment. I haven't been feeling really good since then... Not sure if it would be die off symptoms at this point or if it is just all of the other problems that could be going on with me. I know the antibiotics wouldn't take care of candida if I did have it so I'm on a very low car, low sugar diet during the treatment, and yet gaining weight. I constipate a lot, and it's always a surprise how my stool is gonna look like when I do get to use the bathroom.
I'm only 24, and all of this came to me as a surprise, it's been over a year that I have been dealing with this, and yet I was the healthiest person you could think of, I used to compete as a bodybuilder so to me diet and health was top priority. Not being able to barely walk my dogs now has been extremely depressing... exercising has been the biggest pain of my day too, sometimes I can barely get out of bed. I have a feeling of inflammation all over my body constantly during the day at this point. and I'm getting pretty frustrated with doctors, jumping from one place to another, a many trying to push me to go to a reumatologist so they can tell me is all in my head and I have fibromyalgia or restless leg syndrome... which I do not believe on, is a symptoms, not a disease.
Any help or thoughts would be extremely appreciated, thank you so much for your time.